We were supposed to fly to Cincinnati this morning, but unfortunately when I talked to one of the nurses at Cincinnati Children's yesterday about Faith's cold, they called the anesthesiologists and they said they would not put her under and that they wanted to wait 4-6 weeks following a respiratory cold. We were so bummed out as she seemed to have bounced back so quickly from this bug - fever was down for a few days and she was sleeping through the nights again without coughing or needing any suctioning.
It was especially tough after having prepared her school friends for her being gone for 6-8 weeks and now she will go back to school tomorrow! I'm sure they will understand, but it might be a bit confusing at first.
I just got off the phone with Dr. Gordon's scheduling assistant, Denise, who I talk to pretty frequently when we are planning these things. I really like talking to her, she always fills me in on some gossip about Dr. G! :)
And she is very easy to work with. So, we have new dates....
April 18th - Jaw Distraction, Tonsillectomy and Adenoidectomy
May 16th - Chin Advancement
May 22nd - Removal of Hardware
The good part of this is that we were able to schedule her 2nd and 3rd surgeries just a week apart so we can stay for the week instead of having to fly out twice or have a local surgeon here in Denver do the final surgery.
If all these dates actually hold and no issues arise (we have to be open to that as you can see, things are rarely in our control!) this also means Faith will be done and home in time to go to school for the last 3 days of the school year! They get out pretty early here in Denver, their last day of school is May 29th this year, we also start earlier, usually by mid-August.
So, here's hoping these new dates all work out. It's a bit crazy -- we will actually go to Branson, MO on April 10th (or 11th? I have to check our flight reservations again) for Meghan's wedding on Saturday, the 13th, and then we drive back up to KC to fly home on Monday the 15th. I'm think I might just see if Faith and I can fly to Cincinnati from there instead of going home first.
Okay, well I need to call Southwest now and see what they will do for me with our tickets.
More soon,
Robin
Tuesday, February 5, 2013
Sunday, February 3, 2013
Pinewood Derby Races
Cub Scouts Pinewood Derby Race
Anthony's Cub Scouts Pack had their pinewood derby race this weekend and both Anthony and Faith built cars to race. Anthony was not too excited about it at first, but he did pick out a complicated design (a lightening bolt) and after I cut the wood he helped to decorate it and put the weights on it. We didn't do much in the way of performance testing and tuning, so we were all very excited when Anthony won 3rd place!!
Anthony's car was the fastest in a
couple of heats, with a average time of 2.932 seconds!
couple of heats, with a average time of 2.932 seconds!
Here's one of the races that he won...
Faith had so much fun making her derby car, which was a boat with
Patrick (from SpongeBob) in it. Unfortunately we were late
getting back for Faith's race and missed it completely,
although that might have been good since she came in last place
(I think Patrick was a bit of a wind drag and I
heard her car got stuck on the track a couple times!)
Anthony and Faith with their cars and his trophy
Surgery Decision Tomorrow
Faith seems to be mostly better - her fever is gone, and certainly well enough that we would send her back to school, but she's still coughing during the day a bit and I would like to have either the pediatrician or her pulmonologist listen to her lungs and let us know whether they think she's cleared up. I've listened with my stethoscope at home and can't hear anything, but I didn't check it the day they said they could hear stuff. Wish I did so I would know how obvious it was and how much it's improved.
Can't believe we are this close to these plans and just can't be sure yet whether it's a go or not. I would feel better about getting on a plane on Tuesday if the docs here think she sounds good. And I'll give the surgeon's office another call and let them know and make sure that is enough for them. I know there will still be a chance they could change their minds if we get there and she sounds worse, but I just hate the thought of spending $400 on airfare and be told we shouldn't have come!
I will definitely post an update tomorrow night to let you know what the final decision whether we get on the plane on Tuesday!
Robin
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