Wednesday, July 8, 2015

Mid Point check (Post Op 3 weeks)

We saw Dr. Gordon yesterday and got a good progress report. He thought everything is looking good and just wants us to turn her pins for one more week, plus I have to do some hardware adjustments which I felt super uncomfortable doing last time, but I did it then and I watched his residents do it while she was in the hospital after this last surgery, so I guess I can do it again at home rather than setting up another OR appointment. After we are done turning the pins we let it sit for a week to stabalize and then come back for her final surgery to remove the halo/RED. He plans to do a number of other things during that surgery as well including fixing her nose (rhinoplasty), removing the skin bubble (pedicle free flap) from her left jaw that was placed there during her scapula bone graft 3 years ago, shaping her jaw, doing a chin advancement (genioglossis) and adding some bone paste under her eyes (I think he calls it spackling - basically adding some bone paste, which I'm guessing is using some cadaver bone/powder - I'll get more details before hand but I've heard about this from him before and I believe Chloe had it with her last surgery).

It's sounds like a lot in one surgery because it is a lot! He says its about a 4 hour surgery and she will be in the hospital for 2-3 days afterwards, so I'm working with his scheduling assistant to set it up. He said it will might be a weekend because he didn't think he has a 4 hr opening in that timeframe. That's just the way he is, working all the time.

Once i confirm the dates I will provide another update including new pics. The change is huge right now, but some of that is just the way it's being pulled forward right now.

We are finally driving home. It's been a long trip and we are anxious to get home. It was good to take the time off to spend with Faith and it was great seeing friends in NY and my family in VA. It's never enough time to visit with each person, but I love being back home and it was great having my mom's family (Debbie, Bobby, Carol, Tresa, Richard, Sean and Tanner) there too. So glad our dates worked with the family reunion! Faith and Anthony both loved the campfires and the fireworks!!

All for now, thanks for reading!

Friday, July 3, 2015

2 weeks into Jaw Distraction

Quick update to add some comparison pictures from her before shot to 2 weeks post surgery.  We are in Virginia this week but too busy to do a long post today.  Will try to write an update soon, but the pics below say more than I can write...