Thursday, February 14, 2008

Happy Valentines Day!

Not much going on around our house - except for me traveling 2 weeks in a row (got home this morning and I'm exhausted!). All 5 kids are doing great and Faith is walking easily now (my neighbor described her walking as that "just got off a horse" walk - wide and bow-legged!). Fred and I are trying to plan a couple nights away for the two of us at the end of the month since Lisa agreed to watch Faith and Dana will watch Anthony (at her mom's). It will just be something local with plans to sleep in and nothing we have to do!!

I am also trying to figure out a good time to plan a trip to take Faith to Philadelphia this spring or summer (probably April or August) to be evaluated by Dr. Bartlett at CHOP for her jaw reconstruction (hopefully happening next summer - seems so close now). I had hoped to meet with him without bringing her - just have him look at her CT scans but I was told by the coordinator that I need to bring her - just not sure how to do it without Fred or a nurse since I was planning to combine it with a work trip (and a weekend in VA if possible).

In addition to that, I am planning to take her to LA in October for a Microtia Atresia conference with the best surgeons in the country for canalplasty (to build ear canals if she is a candidate) and for the outer ear reconstruction, just to learn more about those options and start thinking about what we want to do. Bob and Rosemarie (Fred's parents) are planning to join us in LA to help out and visit, which I'm very happy about.
So many trips this year with me going to Spain for M&D's anniversary and Fred's 2 Vegas trips (his annual guys trip and one for Lauren's 21st b-day) plus he is hoping to take Ryan and Dana to NY for a long weekend over the summer -- I don't know if we can really pull it all off!!! The good news is that I discovered that Southwest Airlines will provide us 2 free tickets per year to take Faith on medically necessary trips - how extremely generous. I'm trying to find out if any other airlines do it as well, I think Northwest MIGHT.
haven't been able to get any videos uploaded yet because my video camera docking station doesn't seem to work. Maybe this weekend I will take it in to Best Buy and have them replace it (I finally got a warranty on something, I should take advantage of it!!).
We love reading your guestbook postings - thanks for all the support each of you gives us, it means so much to us.

Love always,
Robin
XOXOXOX (for Valentines!)

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