On the plane and ready to go!! We get into Cincinnati at 2:30 ish and will drive to Dayton and are staying at the Ronald McDonald House again. Faith's surgery starts at 11:45 eastern (9:45 MT) and will probably take a few hours.
I will try to keep you all updated.
The plan is to remove her headgear, do some final touch up work on her jaw, cheekbones and nose. Fingers crossed this is the last major jaw surgery Faith needs. It may take several months before we know the full results for her airway and whether her trach can come out, but that is the goal!!
It addition to her jaw stuff, an ENT is going to be putting in a new BAHA post for Faith, her existing one became unstable this summer after another ENT added a post extension, not really sure why that happened but it did and so it’s better to get it replaced now while she’s under for this one.
We also have another very minor outpatient surgery scheduled for mid-September to remove an eye dermoid (like a cyst, but it’s actually just a skin growth on her eye).
I’m super excited to see the results of this surgery and the one in September too.
Faith is currently on Homebound education, taking just 2 classes the first quarter, English and Biology. She can take as slow as she likes and then she can start going back to school part-time when she’s ready.
Speaking of school, we dropped Anthony off at CSU - Colorado State University on Monday. It was so bittersweet! Exciting to see him starting this new adventure in his life and sad of course to come home to his empty bedroom. It’ll be tough not seeing him every day, but we’ll be keeping in close touch through text and FaceTime!
Will update more tomorrow!
Love you all!! ❤️🥰❤️
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