First and foremost, Faith is doing really well!! Her jaw was unwired on September 1st and she has been recovering quickly - she started eating again with an icee drink in the hospital and a McD's soft serve cone on the way home. Since then she's continued to try lots of other foods including lots of ice cream, ramen noodles, tacos(!), popcorn and last night she actually went to visit her old co-workers at Parry's Pizza and brought home some cheesy bread (pizza) and some dessert doughy bread. Eating is still difficult, she doesn't have good alignment between her upper and lower jaw, so she is struggling with chewing and she is using gravity to help move the food to the back of her mouth quite a bit (so she likes to eat lying down!). Overall though, I think she is progressing well.
About a week - 10 days post op - finally pain free (most of the time!)
Right after getting her wires removed - Soft Serve Ice Cream
10 days post-op - at the movies eating popcorn and gummies!
Now it becomes a wait and see game - we just need to see how her jaw heals over the next couple months, does she keep all or even just enough of the new jaw bone she needs in order to improve the airway enough to get her trach out or not. Only time will tell us and both Faith and I have noticed that her jaw has receded a bit already, which is well, scary. Please, please, please, let her keep enough for this surgery to have been a complete success. The change to her upper jaw is already so significant to have made the surgery worth having, yet, the ultimate goal has remained the same with every jaw surgery she's been through and we are ready to cross the goal line!!
There will be another surgery later this year, mostly just for touch-ups to her jaw and nose, so I'll post again soon.
Best,
Robin and Faith
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